Original Research
Using caregivers’ perceptions of rehabilitation services for children with Cerebral Palsy at public sector hospitals to identify the components of an appropriate service
South African Journal of Physiotherapy | Vol 67, No 3 | a53 |
DOI: https://doi.org/10.4102/sajp.v67i3.53
| © 2011 G.M. Saloojee, P.L. Rosenbaum, A.V. Stewart
| This work is licensed under CC Attribution 4.0
Submitted: 06 January 2011 | Published: 06 January 2011
Submitted: 06 January 2011 | Published: 06 January 2011
About the author(s)
G.M. Saloojee, School of Therapeutic Sciences, Physiotherapy Department University of the Witwatersand, Johannesburg, South Africa.P.L. Rosenbaum, CanChild, Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.
A.V. Stewart, School of Therapeutic Sciences, Physiotherapy Department University of the Witwatersand, Johannesburg, South Africa.
Full Text:
PDF (310KB)Abstract
Despite a growing body of evidence favouring a family-centred approach to rehabilitation services for children with cerebral palsy (cp), the essential components for a quality service for children with disabilities and their families living in poorly-resourced South African (SA) settings remains unknown. The study aimed to identify key components of an appropriate rehabilitation service which would meet the needs of children with CP and their caregivers at SA public sector hospitals. This cross-sectional descriptive study used the modified Measure of processes of care (Mpoc-20) questionnaire together with two open-endedquestions with a convenience sample of caregivers attending therapy at CP Clinics in gauteng and limpopo hospitals. A total of 263 caregivers attending cerebral palsy clinics at 31 public sector hospitals in gauteng and limpopo were interviewed. Kind and caring attitudes, exercises or “training” for the child, and practical assistance (handling ideas and suggestions, assistive devices, food supplements, nappies, advice) were components of care most valued. The most frustration was caused by long queues waiting for files or at the pharmacy and being treated disrespectfully whilst providing caregivers with information and explanations regarding treatment choice were services that could be improved. Key components for an appropriate therapy service include caring and respectful attitudes, hands-on therapy, handling suggestions and practical assistance. Logistical and administrative procedures together with disrespectul and unhelpful attitudes negatively impact rehabilitation service delivery.
Keywords
cerebral palsy; caregivers; therapy service; measure of processes of care (mpoc)
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